I am Marina. I’m 28 years old and have Angelman Syndrome. I live at home with my parents in Tallahassee, FL. I go to two different adult programs but neither are dedicated to helping me express myself or be independent out in the community. I want to March to show people that every person is worthy of respect, and can make a difference in the world, regardless of whether they are nonverbal or need support from others.

I am active in the Foundation for Angelman Syndrome Therapeutics and this shot was taken at the FAST Gala in Chicago in Dec. FAST is dedicated to curing my genetic disorder, Angelman Syndrome. Check us out at Cureangelman.org