Marlene, William, and Neylan

Marlene-mom with osteogenesis imperfecta Son William with sensory processing disorder Daughter Neylan with albinism low vision and glycogen storage disorder XI and developmental delays All stand in front of a decorated Christmas tree.
Marlene-mom with osteogenesis imperfecta
Son William with sensory processing disorder
Daughter Neylan with albinism low vision and glycogen storage disorder XI and developmental delays
All stand in front of a decorated Christmas tree.

Both myself and our daughter and our son have disabilities. I have osteogenesis imperfecta, I am a pharmacist I worked hard to achieve my degree the college wanted to discriminate against me and not allow me into the program. Our daughter has albinism, low vision and a life threatening genetic disorder called glycogen storage disorder XI.   I am worried about losing the ACA for without it we both have pre-exhisting conditions.  Our son has Sensory Processing Disorder. Both our son and daughter require acconadtions for learning. I am worried that kids that require special education will be forgotten.  I want to make sure that no one with a disability is forgotten. That everyone is treated equal and receives the support and acconadtions to live happy, healthy, productive lives.

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