
I have lived with ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome) since 1983 and have been completely disabled since 1987. I am joining the march because repealing the Affordable Care Act will mean that hundreds of thousands of people who share my illness will lose health insurance. Without proper care, many will lose the small amount of function that they have now. Life with ME/CFS and good health care is extremely difficult. Without care, life will be impossible to manage.