I’m joining the disability march because I can’t make it to the march in DC with my family because of my disabilities. Spending a full day on my feet is just not an option. My doctors regularly joke that I have the body of an 80 year old (I do have the bone density of a 75 year old). I’ve spent the past few years gathering a variety of diagnoses but no one has a clear idea of the source or how to treat it. I need to go to the doctor every week trying to figure out what’s going on and to keep the pain from becoming unmanageable again. I’m terrified of losing my insurance. I’m on my mom’s insurance while I still can be, have a dozen different preexisting conditions, and desperately need insurance to afford my bills. Without the ACA I’ll never be able to find out what’s happening to my body. I’ll never be able to afford the doctors I need to find out what’s wrong and will never find a treatment that works. Without the ACA my life will be impossibly difficult and I’ll never be able to live the way I want to.

I’m a 20 year old medical mystery. I dropped out of college when my health problems got to be too much. I work on horse farms (for now) and sell handmade jewelry online.