I’m joining the March because I am so frightened about the incoming administration for so many reasons: as a woman, as a person with a disability, as a nurse who spent years working with underserved immigrant communities and then later with patients with complex, multi-organ system disease who often struggle to get the care they need. We must organize to make sure that the gains we e made under President Obama, such as the ACA, are not reversed! Our lives are on the line!

I’m a nurse and case manager for patients with rare genetic disease who had to leave my work at age 57 due to mitochondrial disease, a progressive neuromuscular disorder that among other symptoms causes extreme fatigue, muscle pain, seizures, developmental disabilities, migraines, autonomic nervous system dysfunction, and mental fogginess. My daughter died of mitochondrial disease at age 10.