
I am one of the Millions Missing from full, active participation in society due to ME/CFS. Since becoming disabled a year ago, I’ve realized how invisible the disabled are—how often we’re overlooked even on lists of the vulnerable. (I implicate myself in that as well.) I am glad to unite with others in making our voices heard—not just the disabled, but all who believe every individual has the right to be loved and cared for, to receive a good education, to participate in society, and to live in dignity. I have taken many things for granted all my life, from the right to assembly and free speech to a belief that we would always progress toward ever greater equality. I realize now that those are not guaranteed without a determined citizenry willing to stand up for them—even when actually standing up is a challenge.
I’ve been ill with ME for 21 years and disabled for one. If nothing else, I’ve learned a lot about resilience, solidarity, and interdependence (and the insides of doctors’ offices). I am a Quaker, and I write about lives that “leap greenly” but unfold slowly at thestoriesoftrees.wordpress.com.