Heidi Menera Norgaard

I have been suffering with Chronic Fatigue Syndrome/ Myalgic Encephalomyelitis for almost 10 years. I was only recently diagnosed. For years, doctors dismissed, doubted, belittled and ignored me. I have been misdiagnosed and mistreated. I have been misguided by doctors and given unnecessary medications and harmful medical advice. Without a diagnosis for so long, I did my best to hide my symptoms, except from those closest to me. However, my symptoms have gradually become debilitating, leaving me housebound for weeks at a time. I have become a shell of my former self. My illness had been invisible, but this past year I began having seizure-like episodes that the doctors are unable to explain. I never know when one will come on, what triggers it or how long it will last. Being unable to participate physically can leave people with disabilities feeling helpless in so many ways, that is why this online march is so important. It gives us a voice and a means to advocate for ourselves rather than having to depend on others, something many of us have to do too much of in our a daily lives.

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