Nora Roth-Cohen: Why I Am Joining The March : I am a woman and have daughters! Fay Baker: Comment: I have been upset because I cannot do the walking required for the March on Saturday, but I would live to participate! Sally Lashley: Comment: I have Lupus and am unable to march but I am there in spirit….
Category: Uncategorized
Amy Millios
Four years ago I was diagnosed with an autoimmune arthritis that made it impossible for me to keep working. As a result, I lost my employer-sponsored health insurance and went without insurance for a year (getting sicker) until the ACA took effect. Getting coverage under the ACA enabled me to start treatment once again and…
Princess Bear Maddison
Why I am joining: I am a Proud US citizen who is also a Proud Mother to a Beautiful, Smart & sweet 7 year old girl with Pompe Disease. She is not able to break down glycogen (sugar stored in our body) due to absent enzyme alpha glucosidase. The only treatment is Enzyme replacement therapy ….
Adria Roblee-Hertzmark
Though I am unable to I want to march because the incoming administration is a threat on so many issues, including a wide variety of human rights including some that affect me personally as a disabled woman as well as other important issues and the very institutions of our nation. I would march to protect…
Tara Plutz
My name is Tara Plutz and I live in Virginia. I am a 35-year-old disabled women and I run an awareness page for invisible illnesses called Count My Spoons. I March because I have a rare genetic disease that causes tumors to grow in my Endocrine system, endometriosis, cluster migraines and anxiety and depression….
Mary Shepard
I am a widow and a mother of three school aged kids. I am disabled and require life-long medical care and last year I was diagnosed with breast cancer. I rely on medicaid to stay alive and care for my children. My children rely on medicaid as well. One of my children has autism. The…
Sherri Roxx
Why: I’m Marching Because I’m Disabled & I believe in Equality for everyone. Protesting All Of The Hate!!! Bio: Sherri “Baby” Roxx~ is a graduate of Five Towns College. Her Major was Contemporary Jazz on Guitar. Over the past 20 years Sherri has performed at venues such as The Staller Center in Stonybrook , as the…
Elizabeth
I kept hoping that I would have an extraordinarily good day and be able to go to the nearby March in Washington for an hour. I am not nearly well enough to go now and 30 years experience tells me that that it won’t change by tomorrow for the March. That’s because of chronic fatigue…
Joannah Whitney
I was diagnosed with MS in 2000. The first several years of my illness involved dealing with my illness, and the side effects of treatment, and also always having to do end-runs around insurance limitations that made it very difficult to follow my neurologist’s medical advice. I would find a treatment I could tolerate…
Disability March 